Sunday, January 3, 2010


So, we're home again as of yesterday! Yeah!
When we're in the hospital, you only want to leave and all be home. As we're now home again, we're adjusting back to our routine again. We sort of forgot how behind you get as you spend time in the hospital. Suddenly you have to deal with loads of laundry, toilets to scrub, dinners to make, and all those things everybody does each day! You sort of put all of those things on hold as you live in the hospital or at least the focus disappear.
Sarah also sort of got used to having the attention of one adult each day, and had a bit of a hard time adjusting to sharing our attention with Jacob's suctioning, feedings, medications, and all the other little things that are part of his care. First I didn't understand why that was an issue, but then I realized my sister was with us last time we came home, and that helped us to see to both kids' needs.
Lastly, it's HARD to never be alone in your own home...Every time we get to go home, our nursing company needs to come out and start up the care. The nursing director spent hours here last night, then we had a new night nurse last night. Today, we had the respiratory therapist spend the afternoon with us and Jacob. I am looking at the clock, and thinking that there went another afternoon again...We're also still training our day nurse, and don't even feel we can leave her alone with Jacob. Don't take me wrong, we do need the help, but it comes with a big price of not being alone in your home and also educating and training nurses. You realize that no medical expert knows Jacob the way we know him.
So, we're adjusting back home once again. Jacob is hopefully getting over his cold as long as we can stay on top of his suctioning. Sarah is going back to school on Tuesday, and Joakim and I go back to work this week.
And don't take me wrong, we much rather deal with the day-to-day chores of life at home than living in the hospital!
To more days at home,
P.S. And if you want to see photographer Mary Beth Graff feature us on her blog:

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