We got home from Children's on Sunday. Unfortunately, Jacob hasn't been himself since we got home. He has been very sleepy and lethargic most of the week. Yesterday, Jacob started to have a hard time keeping his temperature up. We have been talking to Dr. E. and Dr. C. throughout the week to run labs, and try to figure out what was going on with our boy. Today we had a doctor's appointment with Dr. E.
Dr. E. pretty quickly diagnosed Jacob with sepsis. It is the one diagnosis you don't want to ever hear. They were also concerned about one of Jacob's pupil being enlarged and his blood values being off believing Jacob possibly had a bleed in his brain. A CT scan of his brain was ordered as we were transferred to the ED. I know Jacob is really sick when Dr. E. drops everything for Jacob. That is what she did today. She took him over to the ED herself (getting instructions from the nurses on how to steer the bed), and she stayed with him the whole time he was in the ED. She also feels extra responsible when she knows Dr. C. is out of town. They are a good pair taking care of our boy.
Jacob's low body temperature and low blood pressures are both signs of sepsis and adrenaline shock. They don't know what they are treating, so they are treating both. The heavy guns antibiotics are on board, stress steroids are on board, and Jacob is needing medicine to keep his blood pressure up.
He doesn't have enough access tonight with only his medi-port. They finally got an IV line in in addition to his medi-port, but the team is already talking about putting in a central line so they also can measure his blood pressure at all times. We have been here before. It is just so long ago.
I am worried about our boy tonight. Him not holding his own body temperature and blood pressure are not good signs. Once again I am holding on to hope, hope that my strong brave warrior boy is ready for this fight once again. Our son Jacob.
Thanks again for the outpour of love and support. Before I knew it, Sarah was at a friend's house where she is completely comfortable.
Friends and family always wonder what they can do for Jacob in times of crisis. Lit a candle for our boy tonight, and send positive thoughts, prayers and juju his way. He needs it right now.