What a great post! You're little stinker looks so much like my son! I was going thru Jacob's pictures. There is no doubt he is surrounded by an amazing family that adores him! You're post was beautiful and made me think. We also knew deep down that Talon had a mitochondrial disease before his long waited genetic diagnosis. Our journey started with him having seizures when he was 10 weeks old, which began our relationships with neurologists and specialists. For two years straight, I cried. I still cry. A lot. I guess what I would tell myself before we had any idea a child so special would be given to us is that we can do all things through Christ who strengthens us. That it's going to be terrifying, it's going to make me question everything that I thought once was. But that I will soon learn to rely completely on God, because this disease called mito is more than I can handle. And the most important thing I would tell myself is that it's not about this present life ,it's about our eternal life. And to not try to figure out why because it will just make me nuts!
Hi Krissy,Thank you so much for your comment. I know that Mito really tests us and our kiddos over and over again. I am glad you have found your source of strength, and it is interesting how Mito kids often look alike! I would love to find out more about Talon! You can email me off-line too! Thanks, Maria.