Friday, March 14, 2014


Days filled with Colorado sunshine and warmth provide "spring teasers" from Mother nature. We see little signs of spring every week, and we try to take advantage of these warm moments as often as we can.

 Jacob out on his bike with his favorite two friends.

 Today at McKay lake next to our house.

I must say that this has been one of the smoothest winters in a long time in our house. I know we are not out of the woods just yet, but Jacob not being in the hospital a single time in the months of January and February must be a first. I typically get a case of cabin fever every winter, but it has not yet happened this year. Both months came and went so very quickly. Maybe having my best friend from Sweden visiting made the month of February just go by a little bit quicker?

Our boy gave everyone a scare last week with an abnormal creatinine level indicating that something was wrong with his kidneys. After multiple tests, his creatinine level came back normal again. The doctor said it is a complete mystery. This is not supposed to happen. Your level is either good or not, it doesn't bounce around from day to day. The good thing was that we got to go home instead of getting admitted, which allowed us to enjoy a crazy fun 3 days of volleyball at Colorado convention center with our girl.

Most of Jacob's doctors want to see him every 2-3 months. Often multiple appointments fall in the same month or even the same week due to the regularity of his follow ups. This week was filled with follow up appointments. Next week we're doing another three trips down to Children's. The good thing is that Jacob's ENT doctor caught a nasty double-sided ear infection.

What warms my heart as much as my spring teasers is Dr. E admitting that Jacob looks really good right now. She is as afraid to say those words as  I am, since we're always afraid we will jinx it. At the same time, we are very much enjoying Jacob looking really good right now.

Jacob is not just looking good. He is also very happy to have his Gemma back again. With the help of his talker, Jacob is persistently asking to see "his baby". Our Jacob has very much welcomed Gemma's baby Derek into our family as well.

Spring here we come!

Love, Maria.

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